Annabelle Gurwitch, New York Times Bestselling Author, shared the following post by Julia Maués, Co-Founder of Grasp Cancer, on X, adding the following:
“This is one of the most, if not the most important issue to all in treatment for serious and chronic conditions: can a treatment be considered successful if your quality of life isn’t a consideration? Important read for all stakeholders.”
Quoting Julia Maués’ post:
“So grateful to everyone who made this happen! Our PCDI paper is now open access!
An idea and initiative driven by advocates – and now our paper on the patient survey is available to anyone, NO PAYWALL!”
Source: Annabelle Gurwitch/X and Julia Maués/X