Debbie Drell, Associate Director, Lead, Friedreich Ataxia, and Rare Disease Patient Advocacy at Biogen, recently shared on LinkedIn:
“Such a joy to join Ron Bartek, Friedreich’s Ataxia Research Alliance (FARA) President and Co-Founder, and nearly 1,000 rare disease patient advocates for an entire week dedicated to Rare Disease Day 2024.”
Source: Debbie Drell/LinkedIn